Find your tribe!

Oh my gosh, oh my gosh, oh my gosh! I can't WAIT to write this morning and share good news with you all!!!  Miracles folks, they do happen every day. Hold the hope. Keep the vision! Did I tell you I finally got an appointment with Duke University? Well, I'm pretty excited about it. But… Continue reading Find your tribe!

Hope and Goals

It's been awhile... life with a CSF leak is a crazy, crazy place. But I would like to shout from the rooftops that I have an appointment with Dr. Grey at Duke Univ later this month and I'm extremely hopeful it will be the miracle I expect it to be. I've been focused on finding… Continue reading Hope and Goals

Wishes Fulfilled

This morning is a big day. A huge day. I thought to myself this morning "I've been on my feet all morning". .... Did you catch it? I almost didn't. I've been on my FEET all MORNING. Literally. It's 11am. I sat up at 8am to help my son set up a game of old… Continue reading Wishes Fulfilled

CSF Leak Treatment continues…

I've been reading other bloggers lately with CSF leaks trying to gleam treatment ideas, and it occurred to me that I should give more details of my own treatment to share with others that are searching. The situation: I was in a car accident in late September 2013.That means I've been on bedrest for about… Continue reading CSF Leak Treatment continues…

The Joy of Just Being

I think perhaps that is my lesson (well one of them anyway). Remember to just BE. It's so impossible. I swear, if the Universe had provided me with any gift OTHER than A) a brain injury that literally HURTS to concentrate or think (or read for that mater) and B) a spinal fluid leak that… Continue reading The Joy of Just Being

CSF Leak, Bedrest and Grays Anatomy

Apparently the jokes on me. How many of you saw it coming? After carefully planning my polka dot drawers, I mustered up all of my self confidence, rolled into the Cath Lab, put on my gown... and was delicately informed that "panties must be removed so they can get to my femoral artery (in the… Continue reading CSF Leak, Bedrest and Grays Anatomy